SEER records how many people in the US get each cancer and how long they live, by stage, age, race, and year.
SEER, the Surveillance, Epidemiology, and End Results programme, holds US cancer incidence, survival and prevalence statistics collected since 1973, broken down by stage, age, race and year of diagnosis. It is run by the NCI and the statistics are public; SEER*Explorer provides interactive access, and the data underpin most published US survival figures. On OnCo it is cited by the bottlenecks The hardest cancers are found late, Survivorship and late effects are neglected, Data silos, Weak real-world evidence and registries and Funding follows fashion, not burden. It also supports ideas such as A live national dashboard of stage at diagnosis as the scorecard for early detection and Randomise inside the cancer registry: registry-based trials for everyday questions.
Shares A public tracker of how long each country takes to adopt new evidence, A public dashboard of research money per death for every cancer, Make a population cancer registry a condition of every cancer aid programme, Set trial enrolment targets from who actually gets the disease, and publish progress live.
Shares Emulate the trial in real-world data first to decide which trials to run, Link every national cancer registry to tumour genomics, An organotropism atlas that predicts where a cancer will spread, Randomise inside the registry that already follows every patient.
Shares A public dashboard of research money per death for every cancer, Data silos, Funding follows fashion, not burden, National Cancer Institute (NIH).
Shares A national late-effects registry linking treatment exposures to outcomes decades later, Registries count diagnoses and deaths, and not what treatment left behind, Weak real-world evidence and registries, Data silos.
Shares Counting the people who live after cancer, and why the number is not a detail, Registries count diagnoses and deaths, and not what treatment left behind, Data silos, Survivorship and late effects are neglected.
Shares Set trial enrolment targets from who actually gets the disease, and publish progress live, A public map of trial deserts to steer where new sites open, Pay for residual disease tests only inside a trial or registry, Randomise inside the registry that already follows every patient.
Shares Bank yearly blood from cancer survivors so future tests can be validated, An organotropism atlas that predicts where a cancer will spread, Data silos.
Shares Automatic weekly linkage of cancer registries to deaths, prescriptions and imaging, Emulate the trial in real-world data first to decide which trials to run, Randomise inside the cancer registry: registry-based trials for everyday questions, Mandatory interval-cancer audit for every blood-based screening test.
Open-source projects that are the code behind this collection or publish it, from OnCo's own catalogue: licence and last activity as the repository reported them on the day of the fetch. Listing is not endorsement; check the licence before reuse and the validation before clinical use.
The reference Java library for the NAACCR XML data exchange standard used by North American cancer registries.
Java implementations of the algorithms SEER registries apply: site recodes, survival time, census tract linkage and more.