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Join the national list of who got cancer to the genetic profile of each tumour, so we can see for the whole population which mutations matter and which drugs work for them.
Genomics England linked to the English cancer registry, and Nordic biobanks linked to registries, show the power of population-scale genomics with outcomes. Most countries with registries have no such linkage; genomic data sit in labs. The proposal funds registry-genomics linkage in every country with a population registry, using privacy-preserving tokens and structured genomic deposit, with governed access for real-world studies of biomarker-defined populations.
Shares SEER (Surveillance, Epidemiology, and End Results), Weak real-world evidence and registries, Data silos.
Shares AACR Project GENIE, SEER (Surveillance, Epidemiology, and End Results), Weak real-world evidence and registries, Data silos.
Shares AACR Project GENIE, SEER (Surveillance, Epidemiology, and End Results), Weak real-world evidence and registries, Rare and paediatric cancers without markets.
Shares AACR Project GENIE, SEER (Surveillance, Epidemiology, and End Results), Weak real-world evidence and registries.
Shares SEER (Surveillance, Epidemiology, and End Results), Weak real-world evidence and registries, Data silos.
Shares AACR Project GENIE, Data silos, Whole-exome & whole-genome sequencing, Rare and paediatric cancers without markets.