Loading
Connect the cancer registry to death records, pharmacy records and scan reports automatically every week, so we always know what happened to every patient without anyone filling in a form.
Most registries capture diagnosis well and outcomes poorly, with follow-up lagging years. Nordic registries and England's National Disease Registration Service show that deterministic linkage to death, hospital episode, prescribing and imaging records makes near-complete outcome capture routine. The proposal funds automated pipelines with statutory access and weekly refresh in every registry country, plus derivation of progression proxies from imaging report text using validated NLP.
Shares Real-world evidence, Weak real-world evidence and registries, Data silos.
Shares Real-world evidence, Weak real-world evidence and registries, Data silos.
Shares Real-world evidence, Weak real-world evidence and registries, Data silos.
Shares SEER (Surveillance, Epidemiology, and End Results), Weak real-world evidence and registries, Data silos.
Shares Real-world evidence, Weak real-world evidence and registries.
Shares Real-world evidence, Weak real-world evidence and registries.