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Every newly diagnosed patient would be asked, as part of standard care, whether their data and leftover tissue can be used for research, so researchers never have to go back and ask.
Cancer centres such as Memorial Sloan Kettering and the Princess Margaret already consent a majority of patients to institutional research protocols at first visit. The proposal is to make this a nationally standardised pathway step with a common consent text and a shared flag in the record, so that data from consented patients can be pooled across centres without re-consent. Ethics committees would recognise the common consent as sufficient for defined categories of research.
Shares Trials enrol too few, too slowly, Memorial Sloan Kettering Cancer Center.
Shares Trials enrol too few, too slowly, Memorial Sloan Kettering Cancer Center.
Shares Princess Margaret Cancer Centre, Data silos, Memorial Sloan Kettering Cancer Center.