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If you join a cancer trial you should be told what it found, in plain words, within twelve months of the results, including if the treatment did not work.
Most trial participants never learn the results. The EU Clinical Trials Regulation requires lay summaries; enforcement and quality are patchy, and most other jurisdictions have no requirement. The proposal is a global norm: lay summary within 12 months of primary completion, delivered directly to participants, with negative results treated identically, and posting in registries as a condition of publication.
Shares Failures are hidden, Patients lack understanding, navigation and agency.
Shares Failures are hidden, Patients lack understanding, navigation and agency.
Shares Failures are hidden, Patients lack understanding, navigation and agency.