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Adolescent and young adult survivors live longest with late effects and are the group most often lost to follow-up as they change doctors over decades. A phone app version of Europe's Survivorship Passport, holding treatment history, exposure-based risk explanations and screening reminders, would travel with them for life.
Adolescent and young adult survivors are the group most likely to be lost to follow-up and to face late effects for the longest. The European SurPass (Survivorship Passport) initiative has developed a standardised electronic passport with treatment summary and individualised follow-up recommendations; adoption is uneven. A patient-held app version with reminders, exposure-based risk explanations, and a shareable summary would improve long-term adherence.
Shares A machine-readable treatment summary handed to every patient and readable by any hospital, Make the treatment exposure record machine-readable, so surveillance can be computed, The handover from children's to adult services, where follow-up falls away, Survivorship and late effects are neglected.
Shares Services built for teenagers and young adults, and what the national evaluation found, Adolescents and young adults: a group with its own cancers, its own gap and its own needs, Survivorship and late effects are neglected, Hodgkin lymphoma.
Shares Services built for teenagers and young adults, and what the national evaluation found, Adolescents and young adults: a group with its own cancers, its own gap and its own needs, Adolescent and young adult cancers (ages 15 to 39).
Shares Adolescent and young adult cancers (ages 15 to 39), Survivorship and late effects are neglected, Hodgkin lymphoma, Acute lymphoblastic leukaemia.
Shares Services built for teenagers and young adults, and what the national evaluation found, The handover from children's to adult services, where follow-up falls away, Survivorship and late effects are neglected, Hodgkin lymphoma.
Shares Treating fear of recurrence: the randomised trials, their effect sizes, and where the treatment is available, The handover from children's to adult services, where follow-up falls away, Survivorship and late effects are neglected.
Shares Patients lack understanding, navigation and agency, Hodgkin lymphoma, Acute lymphoblastic leukaemia.
Shares Services built for teenagers and young adults, and what the national evaluation found, Adolescents and young adults: a group with its own cancers, its own gap and its own needs, Hodgkin lymphoma.