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Susan G. Komen
Susan G. Komen is the best-known breast cancer charity, founded in 1982. It has granted more than $1 billion for research, including early support for HER2-directed therapy, runs a helpline and treatment assistance programme, and holds ShareForCures, a patient-consented registry that shares data for metastatic breast cancer research.
Overview
Founded 1982. Beyond awareness (the pink ribbon), Komen funds research including early support for HER2-directed therapy and metastatic breast cancer studies, runs the Breast Care Helpline and Treatment Assistance Program, the Komen Tissue Bank at IU Simon (normal breast tissue), ShareForCures (patient-consented data and biospecimens), and advocates on stage IV disease, disparities (Stand for H.E.R. for Black women) and coverage of diagnostic imaging. Other key groups: Breast Cancer Research Foundation (research funding), Living Beyond Breast Cancer, METAvivor (metastatic research), Young Survival Coalition.
Holds
Breast cancer patient helpline and financial assistance, ShareForCures patient-powered research registry, research grants (>$1 billion to date), the Komen Tissue Bank, and policy advocacy on screening and treatment access.
Licence
Copyright Komen
Maintainer
Susan G. Komen
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