{"entity":{"id":"idea-data-registry-in-a-box","kind":"idea","name":"Open-source cancer registry-in-a-box for low-resource settings","aka":[],"tldr":"A registry-in-a-box would be a free, ready-to-run cancer registry system, working on phones and without constant internet, so any hospital anywhere can start counting and following its cancer patients.","summary":"Fewer than one in five people in low- and middle-income countries are covered by a high-quality cancer registry. IARC's CanReg5 is the established open tool; the proposal modernises it as a mobile-first, offline-capable system with built-in ICD-O coding assistance, staging, treatment and follow-up modules, automated data-quality checks and export to the Global Initiative for Cancer Registry Development, funded as a global public good with regional support hubs.","asOf":"2026-09-08","links":[{"label":"Global Initiative for Cancer Registry Development (IARC)","url":"https://gicr.iarc.fr/"}],"tags":[],"related":["globocan"],"cancers":[],"sections":["ai-computation"],"technologies":[],"targets":[],"drugs":[],"companies":[],"institutions":["iarc"],"pathways":[],"terms":[],"trials":[],"people":[],"bottlenecks":["b-data-silos","b-global-access"],"keyPapers":[],"journals":[],"dependsOn":[],"notes":[],"hypothesis":"Registry-in-a-box deployment will double the number of population-based registries meeting IARC quality criteria in sub-Saharan Africa within seven years.","rationale":"DHIS2 became the health information backbone of more than 70 countries by being free, offline-capable and supported; cancer registration has no equivalent modern tool.","test":"Deploy in ten hospital registries across three countries; measure case completeness and follow-up rates at 24 months against CanReg5 sites.","maturity":"early-clinical","actor":"philanthropy","cost":"medium","horizonYears":4},"route":"/ideas/idea-data-registry-in-a-box/","neighbours":{"collection":[{"id":"globocan","kind":"collection","name":"GLOBOCAN / Global Cancer Observatory","route":"/collections/globocan/"}],"section":[{"id":"ai-computation","kind":"section","name":"AI & Computation","route":"/fronts/ai-computation/"}],"institution":[{"id":"iarc","kind":"institution","name":"International Agency for Research on Cancer (IARC / WHO)","route":"/institutions/iarc/"}],"bottleneck":[{"id":"b-data-silos","kind":"bottleneck","name":"Data silos","route":"/bottlenecks/b-data-silos/"},{"id":"b-global-access","kind":"bottleneck","name":"Most of the world has almost no cancer care","route":"/bottlenecks/b-global-access/"}],"idea":[{"id":"idea-data-access-programme-outcomes","kind":"idea","name":"One outcome record for every donated or discounted cancer drug pack","route":"/ideas/idea-data-access-programme-outcomes/"}]}}