{"entity":{"id":"idea-data-dynamic-consent-app","kind":"idea","name":"Dynamic consent with usage receipts","aka":[],"tldr":"An app where patients choose what their data can be used for, see every time it is used, and can switch permissions on or off.","summary":"Dynamic consent replaces the one-off paper form with an ongoing digital relationship: granular preferences (commercial use, genomic data, contact for trials), notifications when data are used, and revocation that propagates to data holders. Pilots in Australia (CTRL platform) and rare-disease registries have shown feasibility. The oncology-specific version adds automatic trial-matching alerts as a return of value to the patient.","asOf":"2026-09-08","links":[{"label":"Bottleneck evidence (Data silos): AACR Project GENIE","url":"https://www.aacr.org/professionals/research/aacr-project-genie/"}],"tags":[],"related":[],"cancers":[],"sections":["ai-computation"],"technologies":["ai-trial-matching"],"targets":[],"drugs":[],"companies":["patient-data-vault"],"institutions":[],"pathways":[],"terms":[],"trials":[],"people":[],"bottlenecks":["b-data-silos","b-patient-voice"],"keyPapers":[],"journals":[],"dependsOn":[],"notes":[],"hypothesis":"Patients given dynamic consent will permit broader use (more categories ticked) and remain enrolled longer than patients under static broad consent, because transparency and reciprocity increase trust.","rationale":"Trust, not privacy law, is what limits sharing; usage receipts turn an abstract promise into a verifiable one. Rare-disease cohorts using dynamic consent report higher retention.","test":"Randomise consecutive patients at two centres to static broad consent versus a dynamic consent app; compare permission breadth, withdrawal at 12 months, and patient-reported trust.","maturity":"early-clinical","actor":"patients","cost":"small","horizonYears":2},"route":"/ideas/idea-data-dynamic-consent-app/","neighbours":{"section":[{"id":"ai-computation","kind":"section","name":"AI & Computation","route":"/fronts/ai-computation/"}],"technology":[{"id":"ai-trial-matching","kind":"technology","name":"AI trial matching & clinical decision support","route":"/technologies/ai-trial-matching/"}],"company":[{"id":"patient-data-vault","kind":"company","name":"Patient Data Vault (data-vault.health)","route":"/companies/patient-data-vault/"}],"bottleneck":[{"id":"b-data-silos","kind":"bottleneck","name":"Data silos","route":"/bottlenecks/b-data-silos/"},{"id":"b-patient-voice","kind":"bottleneck","name":"Patients lack understanding, navigation and agency","route":"/bottlenecks/b-patient-voice/"}]}}